Meeting with Weber

We finally met with Dr. Weber and I really wish that the nightmare would go aware. She was very nice about the whole thing. But she had printed out a chart of Mom's Bence Jones results since she has been diagnosed. When she first entered the hospital back in January of 2008 it was 604 and it rapidly went just above 2,000. Then with treatment is stayed under 1,000 until after we took the chemo break so that her heart could recover from the EF of 22%. At the end of the break it had gone up to 2,400 and we started chemo again. It bounced around and was just under 3,000 when we started the Revlimid. The Revlimid brought it down to 500 which was amazing but it also reduced her EF from the 40's to the 20's again. She stopped the Revlimid on May 18 and the results from the 24 hour urine turned in on Friday, June 19 showed a Bence Jones of over 5,000. It is greater than it has ever been.

So Mom has to decide whether or not to continue treatment. If she continues then she will have to have the full dose of Revlimid which makes her feel just awful and we are not sure what it will do to her heart. On the other hand, if she chooses to stop treatment then time will be very short.

We mentioned to Dr. Weber that Mom's bottom lip was numb. That made her very nervous and she ordered a Cat Scan of my brain. They want to make sure that the cancer is not messing around in her brain and pressing on her brain stem. This could be why she is vomiting.

Dad and I decided to wait until we get Mom home then tell her about the meeting with Dr. Weber.